Real patients,
Real stories,
Real inspiration

Standup Champions are people who take XYWAV and want to share their successes and challenges to inspire others with their narcolepsy journey

Whether they're sharing a full day in their lives or offering a few words of encouragement, our Standup Champions want to help other people who have cataplexy and/or excessive daytime sleepiness (EDS) in narcolepsy with the knowledge they've gained through their diagnosis and treatment journeys.

Hear From:

See how Grace, a student in her 20s, navigates her journey with narcolepsy type 1

Watch the video to hear about Grace's narcolepsy diagnosis

Grace discusses her diagnosis

Watch Grace discuss when she was diagnosed with narcolepsy and how she experienced EDS and cataplexy.

Join Jake, an oxybate first‑timer, as he shares his journey living with narcolepsy

Watch the video to hear about Jake's experience with his excessive daytime sleepiness and cataplexy symptoms

Jake's road to diagnosis

Hear from Jake about his experiences with cataplexy and excessive daytime sleepiness before his narcolepsy diagnosis.

Choosing a lower sodium option was something I could do to lower my risk of cardiovascular problems due to excessive sodium. That's why XYWAV, the first and only low-sodium oxybate, stood out to me.”

Jake

Diagnosed with narcolepsy type 1.

Compensated for his time. Results may vary.

Hear from Gina about how she navigates living with narcolepsy and her experience taking XYWAV

Watch a video on Gina's cataplexy and excessive daytime sleepiness symptoms

Gina shares her journey to diagnosis

Watch Gina talk about the time when she was finally able to put a name to her symptoms of cataplexy and excessive daytime sleepiness.

Meet Brooke and find out what life with narcolepsy is like for her

Watch the video to hear about Brooke's diagnosis and starting her treatment with XYWAV®

Brooke′s journey to diagnosis

Watch Brooke talk about her journey to diagnosis and starting treatment with XYWAV.

Learn how Oscar, a health and fitness enthusiast, considers his heart health when managing narcolepsy

Oscar′s journey to diagnosis and
treatment

Hear from Oscar about how he was first diagnosed with narcolepsy and how he finally found treatment with XYWAV after taking wake-promoting agents.

Interested in sharing your journey with others who are struggling with narcolepsy?

Submit your story

IMPORTANT SAFETY INFORMATION

Important Safety Information

WARNING: Taking XYWAV with other central nervous system (CNS) depressants such as medicines used to make you or your child fall asleep, including opioid analgesics, benzodiazepines, sedating antidepressants, antipsychotics, sedating anti-epileptic medicines, general anesthetics, muscle relaxants, alcohol, or street drugs, may cause serious medical problems, including trouble breathing (respiratory depression), low blood pressure (hypotension), changes in alertness (drowsiness), fainting (syncope), and death.

The active ingredient of XYWAV is a form of gamma-hydroxybutyrate (GHB). Abuse or misuse of illegal GHB alone or with other drugs that cause changes in alertness (or consciousness) has caused serious side effects. These effects include seizures, trouble breathing (respiratory depression), changes in alertness (drowsiness), coma, and death. Call your doctor right away if you or your child has any of these serious side effects.

Because of these risks, you have to go through the XYWAV and XYREM REMS to have your or your child's prescription for XYWAV filled.

Do not take XYWAV if you take or your child takes other sleep medicines or sedatives (medicines that cause sleepiness), drinks alcohol, or has a rare problem called succinic semialdehyde dehydrogenase deficiency.

Keep XYWAV in a safe place to prevent abuse and misuse. Selling or giving away XYWAV may harm others, and is against the law. Tell your doctor if you have ever abused or been dependent on alcohol, prescription medicines, or street drugs.

Anyone who takes XYWAV should not do anything that requires them to be fully awake or is dangerous, including driving a car, using heavy machinery, or flying an airplane, for at least 6 hours after taking XYWAV. Those activities should not be done until you know how XYWAV affects you or your child.

XYWAV can cause serious side effects, including the following:

Breathing problems, including slower breathing, trouble breathing, and/or short periods of not breathing while sleeping (sleep apnea). People who already have breathing or lung problems have a higher chance of having breathing problems when they use XYWAV.

Mental health problems, including confusion, seeing or hearing things that are not real (hallucinations), unusual or disturbing thoughts (abnormal thinking), feeling anxious or upset, depression, thoughts of killing yourself or trying to kill yourself, increased tiredness, feelings of guilt or worthlessness, or difficulty concentrating. Tell your doctor if you or your child have or had depression or have tried to harm yourself or themselves. Call your doctor right away if you have or your child has symptoms of mental health problems or a change in weight or appetite.

Sleepwalking. XYWAV can cause sleepwalking, which can cause injuries. Call your doctor if this occurs.

The most common side effects of XYWAV in adults include nausea, headache, dizziness, anxiety, insomnia, decreased appetite, excessive sweating (hyperhidrosis), vomiting, diarrhea, dry mouth, parasomnia (a sleep disorder that can include abnormal dreams, abnormal rapid eye movement (REM) sleep, sleep paralysis, sleep talking, sleep terror, sleep-related eating disorder, sleepwalking, and other abnormal sleep-related events), somnolence, fatigue, and tremor.

The most common side effects of XYREM (which also contains oxybate like XYWAV) in children include nausea, bedwetting, vomiting, headache, weight decrease, decreased appetite, dizziness, and sleepwalking.

XYWAV can cause physical dependence and craving for the medicine when it is not taken as directed. These are not all the possible side effects of XYWAV.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.

Real patients, Real stories, Real inspiration