Share your story,
and you could be a standup champion

If you are taking XYWAV and would like to help inspire others with narcolepsy, please take a moment to share your story. We may use some or all of your story on our website or in other materials.

To be considered for the role of Standup Champion, we first need to know a little more about you. Please help us by completing the three steps below

Step 1: Tell us a little about yourself

*Required field.

First Name*

Last Name*

Email*

ZIP Code*

Phone Number (optional)

I am diagnosed with:*Narcolepsy with cataplexy (type 1)Narcolepsy without cataplexy (type 2)

I have been taking XYWAV for:*

Less than 6 months6 months to 1 yearMore than 1 year

Step 2: Share your Standup Champion Story

Topics to consider (but not limited to) as part of your story could include:

Your journey to a narcolepsy diagnosis
How you have adjusted to living with narcolepsy symptoms of excessive daytime sleepiness (EDS) and/or cataplexy
Your XYWAV treatment routine
Tips from your first night taking XYWAV
Your routines, anything from diet to exercise, that help you

What's your story?*0/1000 character count

Step 3: Upload Photo or Video

Provide one of the following:*

Upload a photo

(JPEG or PNG file only; 20 MB max)

Upload an above shoulder photo of yourself to include with your story.

Upload Photo

and/or

Upload a video

(MP4 or MOV file only; 5 minutes max length, 1 GB max file size)

Before you get started, see our list of video tips. Begin by introducing yourself (first name only) and the type of narcolepsy you have at the beginning of your video.

Upload Video

*Read and Accept the Consent and Release Information

Consent: In connection with the user-generated submissions above, you hereby give permission and consent to Jazz Pharmaceuticals and its Affiliates, together with any third party contractors acting on its behalf, to use your submitted images, video, and/or written statements (the "Recordings") by or on behalf of Jazz Pharmaceuticals. "Recordings" shall also be defined to include any such materials that may be provided to Jazz Pharmaceuticals by you.
License: For value received from Jazz Pharmaceuticals for providing such Services and without further consideration or compensation, you hereby grant to Jazz Pharmaceuticals, its Affiliates, licensees, contractors, designees, successors and assigns, the irrevocable, perpetual, unrestricted, royalty-free and world-wide right to use, re-use, broadcast, exhibit, display, distribute, digitize, transmit, publish and/or republish (a) the Recordings, and (b) your name, likeness, voice, position/title, biographical materials, and/or any statements or quotations that have been or will be made by you relating to the services provided under this Agreement (collectively, the “Statements”); all of the foregoing for any business purpose, including but not limited to internal or external communications, advertising, promotion, editorial, and marketing in any medium now or hereafter known, including but not limited to distribution over the Internet, live-streaming, print, advertising, video, and/or digital media. Jazz Pharmaceuticals will also have the right to use (as specifically set forth above) all or part of the Recordings and/or Statements alone or in combination with any other material without restriction, and may reasonably edit, modify or alter the Recordings and/or Statements provided that the general sense is not changed. You agree that you do not and will not own any copyright or have any rights of ownership or intellectual property in the Recordings and/or Statements, or otherwise have any claim over the Recordings and/or Statements. You hereby waive any right that you have to inspect and approve any finished product incorporating such Recordings and/or Statements that may be used in connection herewith.
Release: You hereby release, and discharge, and agree to hold harmless Jazz Pharmaceuticals and its Affiliates and contractors from any and all liability resulting from any use whatsoever, whether intentional or otherwise, of the Recordings or Statements in accordance with these terms; provided that such use is in accordance with the terms of this Agreement. For the purposes of this Agreement, “Affiliate” means any corporation, limited liability company, partnership, or other entity that directly or indirectly controls, or is controlled by, or is under common control with, a party to this Agreement.

By checking this box, you confirm that you are 18 years of age or older and a resident of the US. You are indicating that you would like to receive information from Jazz Pharmaceuticals about educational programs, products, and services. You can unsubscribe at any time from future communications from Jazz Pharmaceuticals by clicking the “unsubscribe” link provided in communications from Jazz Pharmaceuticals.

By submitting this form, you consent to the collection, use and sharing of sensitive information you provide through this form, including health-related information, by Jazz Pharmaceuticals, its affiliates and service providers to conduct marketing activities and to communicate with you regarding products and services that may be of interest to you.

You understand that Jazz Pharmaceuticals will not sell your sensitive information to third parties.

You can withdraw consent from collection, use or sharing of your sensitive information at any time using one of the methods listed in the US Consumer Health Data Privacy Policy. By clicking Submit, you confirm you have read and agreed with Jazz Pharmaceuticals' Privacy Statement and US Consumer Health Data Privacy Policy.

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IMPORTANT SAFETY INFORMATION

Important Safety Information

WARNING: Taking XYWAV with other central nervous system (CNS) depressants such as medicines used to make you or your child fall asleep, including opioid analgesics, benzodiazepines, sedating antidepressants, antipsychotics, sedating anti-epileptic medicines, general anesthetics, muscle relaxants, alcohol, or street drugs, may cause serious medical problems, including trouble breathing (respiratory depression), low blood pressure (hypotension), changes in alertness (drowsiness), fainting (syncope), and death.

The active ingredient of XYWAV is a form of gamma-hydroxybutyrate (GHB). Abuse or misuse of illegal GHB alone or with other drugs that cause changes in alertness (or consciousness) has caused serious side effects. These effects include seizures, trouble breathing (respiratory depression), changes in alertness (drowsiness), coma, and death. Call your doctor right away if you or your child has any of these serious side effects.

Because of these risks, you have to go through the XYWAV and XYREM REMS to have your or your child's prescription for XYWAV filled.

Do not take XYWAV if you take or your child takes other sleep medicines or sedatives (medicines that cause sleepiness), drinks alcohol, or has a rare problem called succinic semialdehyde dehydrogenase deficiency.

Keep XYWAV in a safe place to prevent abuse and misuse. Selling or giving away XYWAV may harm others, and is against the law. Tell your doctor if you have ever abused or been dependent on alcohol, prescription medicines, or street drugs.

Anyone who takes XYWAV should not do anything that requires them to be fully awake or is dangerous, including driving a car, using heavy machinery, or flying an airplane, for at least 6 hours after taking XYWAV. Those activities should not be done until you know how XYWAV affects you or your child.

XYWAV can cause serious side effects, including the following:

Breathing problems, including slower breathing, trouble breathing, and/or short periods of not breathing while sleeping (sleep apnea). People who already have breathing or lung problems have a higher chance of having breathing problems when they use XYWAV.

Mental health problems, including confusion, seeing or hearing things that are not real (hallucinations), unusual or disturbing thoughts (abnormal thinking), feeling anxious or upset, depression, thoughts of killing yourself or trying to kill yourself, increased tiredness, feelings of guilt or worthlessness, or difficulty concentrating. Tell your doctor if you or your child have or had depression or have tried to harm yourself or themselves. Call your doctor right away if you have or your child has symptoms of mental health problems or a change in weight or appetite.

Sleepwalking. XYWAV can cause sleepwalking, which can cause injuries. Call your doctor if this occurs.

The most common side effects of XYWAV in adults include nausea, headache, dizziness, anxiety, insomnia, decreased appetite, excessive sweating (hyperhidrosis), vomiting, diarrhea, dry mouth, parasomnia (a sleep disorder that can include abnormal dreams, abnormal rapid eye movement (REM) sleep, sleep paralysis, sleep talking, sleep terror, sleep-related eating disorder, sleepwalking, and other abnormal sleep-related events), somnolence, fatigue, and tremor.

The most common side effects of XYREM (which also contains oxybate like XYWAV) in children include nausea, bedwetting, vomiting, headache, weight decrease, decreased appetite, dizziness, and sleepwalking.

XYWAV can cause physical dependence and craving for the medicine when it is not taken as directed. These are not all the possible side effects of XYWAV.

You are encouraged to report negative side effects of prescription drugs to the FDA. Visit www.fda.gov/medwatch, or call 1-800-FDA-1088.